Learn about SMA and the need for screening through Lola’s story
Father of Lola (born with SMA)
Register for our 30-minute webinar: Enabling Better Outcomes Through SMA Carrier Screening
Tuesday, August 24 | 11 AM ET / 8 AM PT
Wednesday, August 25 | 4 PM ET / 1 PM PT
Alecia CampMother of Lola who was diagnosed with SMA at 5 months of age
Barry Byrne, MDPediatric cardiologist specializing in gene therapy at the University of Florida
Alecia will share her family’s journey with SMA and her perspective on the benefits of knowing early about the risk of having a child with a genetic condition.
Dr. Byrne will provide an overview of the latest advances in SMA treatment and how carrier screening can facilitate the logistical, financial, and medical planning needed to access early treatment and enable better outcomes.
Live Q&A will follow the presentations.